Some of the best resources are other Trisomy parents. Whether you need help finding Trisomy-friendly hospitals/doctors, help with medicaid or other financial support, suggestions for activities, or just need the support of others who have been there. Here are some great facebook support groups that can help you navigate the Trisomy world and get what your child needs:
Rare Trisomy Parents
Support Organization for Trisomy (SOFT)
These parents have been there and can offer a wealth of information and support. You are always welcome to reach out to us as well. You can contact us through the phone number at the bottom or your screen or the voice mail phone number.
Here are some other resources we have found to be helpful on this journey (click the links below for more information):