Hope for Trisomy 13 and 18 is a nonprofit, tax-exempt 501(c)(3) created in honor and memory of all living and nonliving children with Trisomy 13 and 18 and Related Conditions. The organization is now doing business as simply HOPE FOR TRISOMY to better represent its broader scope. The Board of Directors is made up of families with living and nonliving children with these conditions.
Trisomy children are like lightning bugs (fireflies): they shine bright and bring joy and wonder into this world
IN THE NEWS
When facing a Trisomy diagnosis it's crucial to connect with others who have been through it before and can offer advice on Trisomy-friendly hospitals and doctors. We are trying to end the discrimination associated with a rare Trisomy, but we are not there yet. Find ways to connect with other familes
We hold an annual "Trisomy Lightning Bug 5k" each year in March (Trisomy Awareness Month) in Arlington, TX. Click the circle below to get more details on how to register or help during, after, or before the 5k.
Tre Avin Spiehs-Garst
Tre was born on his due date after 10 hours of labor. He weighed 6 pounds 9 ounces and was 20 inches long. When he was born, he didn't cry, and he was blue. There were 4 nurses and 2 doctors in the room specifically for him. They turned to me and said that he was only taking shallow breaths. That was enough for me...he was breathing!
Emerson was born via induction at 40 weeks and 2 days and weighed 5 pounds and 15 ounces. He was 18.75 inches long. He made it through the first night, and my gut just knew that he was going to have a very different story from his brother's.
Aiden Jax Gonzalez was born 7/27/18 at 10:19 am and sadly went to heaven the same day at 3:25 pm. He lived a beautiful 5 hrs/6 mins. At my 14 wk ultrasound scan Aiden was found to have Trisomy 13. The specialist asked me to terminate my pregnancy which I refused immediately, with prayers/faith/hope I continued my pregnancy hoping for a miracle and that Aiden would be healthy.
Will James Cowen
We believe that God chose us to be his parents and to be able to provide the most unconditional kind of love during his time on earth. He brought my husband and I closer to God and we are so grateful to have had our special moments with him.