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"I think this is an excellent tool for parents to increase the effective communication between them and their healthcare team. A definite must read!" Bess Raulerson, President of Hope for Trisomy. Felice E. Miller, Ph.D. is a Clinical/Consulting Psychologist in private practice and faculty of UCLA Schools of Medicine and Pepperdine University. As expert in the field of interpersonal and intercultural communication, Dr. Felice has shared with us some effective communication tips to gain control when navigating in the health care system. A Guide to Pediatric Procedures and Hospitalization |
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Noninitiation or Withdrawal of Intensive Care for High-Risk Newborns This is the most recent American Academy of Pediatrics statement about
noninitiation or withdrawal of intensive care for high-risk
newborns. Dr. Christine Nelson (Our Helpful Pediatric Hospitalist) states:
I would see it as a resource if someone was at a
standstill with their birthplan. It clearly states that the
parents should have the most important say when the outcome is
questionable, but it still leaves an open "place" when it comes
to deciding what is "futile." Not perfect, by any means, but
probably as good as a policy statement can be. Download the 3-page PDF document here: http://aappolicy.aappublications.org/cgi/reprint/pediatrics;119/2/401?eaf |
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 An amazing video story about the life of a precious little boy named Eliot who was born with Trisomy 18. His father narrates this touching and incredible heartfelt story told in letters. Check out the video. |
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PRESS RELEASE
Children's Hospital of Philadelphia (CHOP) - "We're Expecting! Opening in January 2008, Special Delivery Unit at Children's Hospital to Be First-of-its-Kind Service for Pregnant Mothers with Birth Defects in Fetus. World's Leading Fetal Surgery Experts Will Offer Seamless Services: Prenatal Diagnosis, Treatment, Delivery and Postnatal Care." Check out the full article on the CHOP website for more information. |
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A must see for parents and medical professionals! This video explains the ethics and requirements for informed consent for treatment that every parent should fully understand prior to accepting treatment or declining treatment. (Go to video) |
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 Deadline: Open
The United Healthcare Children's Foundation is offering support to meet the needs of children across the United States with assistance grants for medical services not fully covered by health insurance. |
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