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My name is Susan Blomstrom and my daughter is Payton, who is the inspiration for Payton's Birthday Bears. Payton was born with Trisomy 13 in August, 2006. I am completing a thesis as part of my Master's degree in Communication Sciences and Disorders at St. Cloud State University, St. Cloud, MN.
No research exists that investigates what we as families with children with Trisomy 13 or 18 want to know and when we want health care providers to give us information. Your responses to the following survey will help determine what recommendations are given to health professionals. The Survey is now closed. Thank you to all families who participated in this Parental Survey. Your time and offered information are very much appreciated. The results are being analyzed and will be available on this site sometime in Fall 2009.
Sincerely,
Susan Blomstrom
The survey is brief and should take only 5-10 minutes to complete. The survey will be available from October 2008 to December 30, 2008.
By completing this survey you are helping to educate health care professionals in both the content and timing of needed information. Parents deserve a voice in this process and by completing this survey, you will help future families whose children are affected by Trisomy 13 or 18. Thank you for honoring these incredible children by educating health care professionals in providing information to families.
Sincerely,
Susan Blomstrom, B.B.A.
Faculty Advisors:
Rebecca Crowell, Au.D. CCC-A
Monica Devers, Ph.D. CCC-SLP |
