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HOPE FOR TRISOMY
Caleb Nathaniel Adamyk PDF Print E-mail

IN MEMORY OF THE MIGHTY MOUSE!!! Fly High Caleb and keep sending those Butterfly's

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"I'am Not a Syndrome" My Name is Simon PDF Print E-mail
All Star Press - Books that Change Lives – will be releasing the e-book version of “I Am Not a Syndrome – My Name is Simon”on Wednesday, August 29, 2012. The book by Trisomy mom Sheryl Crosier details the struggle of her son Simon from the
early stages of pregnancy to his life here on earth for 88 1/2 days. During this same time, Sheryl confronts a sometimes difficult and indifferent medical system to advocate on Simon’s behalf. It is a truly inspirational and moving story.

“I longed to tell Simon’s story of hope, faith, love and the peace which God granted me,” explained Sheryl. “I want to help one understand the battles a family goes through and what a blessing life is no matter how short. It is evident that Trisomy 18 is a diagnosis, not a prognosis and a family’s love does not count chromosomes. Ultimately, God is our Maker and he knows our number of days. I write this book to demonstrate that our children are not a label and are not defects! They have a name and identity. They are children of God.” Please go and Visit Sheryl CrosierWebsite and Read her Blog @ http://www.simonismyname.com or to Order the Book got to https://www.smashwords.com 
For Kindle Readers go to http://amazon.com
 
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HOPE FOR TRISOMY PDF Print E-mail

Hope for Trisomy is in the process of revamping their efforts and website, so stay tuned and be ready to help us tell the world that there IS HOPE for TRISOMY! We are stepping out beyond 13 and 18 and opening up this hope to all rare trisomies and genetic disorders, and hoping to partner with organizations out there already supporting these disorders!

We are also joining forces with the Trisomy Advocacy Group so that we can empower families to make informed decisions regarding their trisomy child. We have some great ideas and resources on the way!

We will also have a blog where we will post stories of all kinds of trisomy children and inspirational stories so that we can provide tangible hope with faces attached. The more sites that share these hopeful stories, the better it is for the future of trisomy children! And if you would be interested in featuring your trisomy child's story and photo as we move efforts forward, please send an email to This e-mail address is being protected from spambots. You need JavaScript enabled to view it . We will get back to you with a format for the submission and photo suggestions.

Please invite your friends and family to join the cause!

 http://www.causes.com/causes/124436-hope-for-trisomy-13-and-18/

HOPE FOR TRISOMY

 
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